Yes, a diagnosis like this is scary to say the least. Disbelief is followed by denial and then come the struggles of adapting to this new life and reality. Your family, loved ones and friends all go through it in their way too.
We have a WhatsApp Group, where members find support, answers to questions and understanding from people in a similar/same position as you.
COMING SOON
We are in the process of building a network of medical and medical support professionals that our members have personally worked with and have experience of.
Each of these resources are placed here with the relevant permissions, in compliance with the POPIA Act. They are recommendations made by members based on personal experience, and not directly from GBS-CIDP Foundation South Africa.
Please share a short story of your journey, to help others, for them to understand or to take comfort from.
